tag:blogger.com,1999:blog-7461139104474725203.post6192291407209208499..comments2023-05-25T18:38:15.639-07:00Comments on Compelled CLarity: New Hope . . .Bodaecia RisingCarole Leighhttp://www.blogger.com/profile/03582166265858848647noreply@blogger.comBlogger20125tag:blogger.com,1999:blog-7461139104474725203.post-41497235537030980392014-07-29T19:20:17.249-07:002014-07-29T19:20:17.249-07:00Hi Carole, I have been checking back regularly for...Hi Carole, I have been checking back regularly for your update. Hoping your new meds are pummeling MM out of your universe. You are in my thoughts and heart all the time, and I look forward to hearing from you or seeing an update. You are an inspiration to me! Love, hugs and friendship, Julie xoxo Juliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-18054214257758117642014-07-29T19:18:00.429-07:002014-07-29T19:18:00.429-07:00Carole! I think about you all the time and worry w...Carole! I think about you all the time and worry when you don't update your blog :/ Hoping you are doing ok, and just too busy to check in here! I also emailed you. When you can, let us know how you are, and how your treatments are going. You inspire me too :) Love and supportive hugs! Julie xoxoJuliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-77717113192792893752014-05-24T11:25:22.474-07:002014-05-24T11:25:22.474-07:00Sheri,
Thank you so much for your comments. Sharin...Sheri,<br />Thank you so much for your comments. Sharing your story has given me such renewed hope that it is possible to regain my kidney function and I am just so happy to know that you are doing so well with yours. I will never give up hope.....your example will keep me going! Thank you...thank you.... :)<br />Love to you,<br />CLCarole Leighhttps://www.blogger.com/profile/03582166265858848647noreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-28384911777115675082014-05-24T11:17:27.146-07:002014-05-24T11:17:27.146-07:00Julie,
I am feeling a lot better now and have had ...Julie,<br />I am feeling a lot better now and have had my first two carfilzomib infusions and I start pomolidamide today. After the last few months, it is so good to feel hopeful again. My outlook is so much improved and part of that maybe that I am reconnecting with the warrior within! I had been on thalidomide during my first round of chemo back at the beginning and it worked well for me, so it seemed to make sense to try it again at a higher dose. I hope you are doing well with your treatment and making good progress. We have so much in common with our MM journeys and I am so thankful that we connected. You are an inspiration to me....we need each other. :) <br />Love to you,<br />CLCarole Leighhttps://www.blogger.com/profile/03582166265858848647noreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-33455910744235405212014-05-24T10:58:37.206-07:002014-05-24T10:58:37.206-07:00Linda,
Your heartfelt words mean so much to me. I...Linda,<br />Your heartfelt words mean so much to me. I cherish our long time and long distance friendship and all the wonderful memories of the times we have had together. You and I, my friend, share a rich history. I look forward to the day when we can go on an epic shopping spree again. <br />My love and hugs to you,<br />CLCarole Leighhttps://www.blogger.com/profile/03582166265858848647noreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-48881563505865716982014-05-24T10:49:06.889-07:002014-05-24T10:49:06.889-07:00Mary Jane,
Thank you for your prayers and good wis...Mary Jane,<br />Thank you for your prayers and good wishes. Congratulations on a successful term as Alpha Delta Kappa Idaho State President. I know you were wonderful!<br />Love to you,<br />CLCarole Leighhttps://www.blogger.com/profile/03582166265858848647noreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-64219440299565811772014-05-24T10:46:36.007-07:002014-05-24T10:46:36.007-07:00Lynn,
I love your line about baking bread, "....Lynn,<br />I love your line about baking bread, "...tangible entry back to a more hope-filled time." Intuitive and so true! I can't tell you how happy I am that you are feeling better. I am going to look forward to seeing you at the September ADK meeting at Sally's! <br />Much love,<br />CLCarole Leighhttps://www.blogger.com/profile/03582166265858848647noreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-27163340963205889822014-05-24T10:43:15.070-07:002014-05-24T10:43:15.070-07:00Love and hugs to you.....Love and hugs to you.....Carole Leighhttps://www.blogger.com/profile/03582166265858848647noreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-34707282456363977662014-05-24T10:39:18.945-07:002014-05-24T10:39:18.945-07:00Karen,
I am feeling better and living with hope AN...Karen,<br />I am feeling better and living with hope AND I am baking cinnamon rolls today. EM to follow...<br />CLCarole Leighhttps://www.blogger.com/profile/03582166265858848647noreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-89362400268249266362014-05-24T10:37:12.655-07:002014-05-24T10:37:12.655-07:00Thank you for this uplifting comment. Blessings t...Thank you for this uplifting comment. Blessings to you, too!<br />CL<br /><br />PS I'm baking cinnamon rolls today!Carole Leighhttps://www.blogger.com/profile/03582166265858848647noreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-32108323621662553972014-05-24T10:34:25.778-07:002014-05-24T10:34:25.778-07:00Back in our days together at Cascade Elementary we...Back in our days together at Cascade Elementary we could never have imagined that both of our lives would lead us to where we are today medically. Isn't it wonderful that we can't see ahead! I am so glad you got to go to Hawaii and see Beazy. I hope your trip gave you a good boost and you have recovered from your shingles. Much love to you. CLCarole Leighhttps://www.blogger.com/profile/03582166265858848647noreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-91945257815881360082014-05-19T13:13:36.147-07:002014-05-19T13:13:36.147-07:00Carole, your story sounds familiar. But I didn...Carole, your story sounds familiar. But I didn't know I had MM until we discovered the kidney failure. Kidney ultrasound looked good, but kidney biopsy showed the proteins clogging everything up. A week later, bone marrow biopsy showed the cancer. I had a peritoneal dialysis catheter inserted and did PD for 2 years. They said plasma-phoresis wouldn't work for me, and that my kidneys, most likely, would never get better. Never give up, because 2 years later, my kidney function increased enough for me to go off of dialysis. My kidney function was at 8% when it all started, and when I got to 15%, my Dr. said I could stop and see what happened. Well now it has been 7 months off dialysis and last week my GFR was 18%! I hope things continue to improve for you, and don't lose hope!Sheri from Idahonoreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-20792309020395691962014-05-18T20:19:25.021-07:002014-05-18T20:19:25.021-07:00Carole!! I am so glad to see a post from you! As w...Carole!! I am so glad to see a post from you! As we know, when we don't see a post from our MM blog buddies... we all worry so much! wow what a torturous journey you have been thru, but you are such a warrior queen! Thank goodness for all the recent positive progress you've made in your battle!!! You are so strong and have battled so much! You are my hero (heroine!) I've wondered why your Docs had you on Thalid vs Rev? And I am so happy your Docs are now moving on to some of the new generation meds! I'm sure you follow all the current research, and thankfully you are getting what it take to send MM out of your universe! What a crazy thing MM is, but sounds like you are in good hands and I hope to see more updates from you, as I miss reading your updates! Sending love, healing hugs and strength your way Carole. I think of you often, and I hope all the new treatments send MM packing so you can celebrate your 100yr anniversary!!! Love and hugs, Julie Juliehttps://www.blogger.com/profile/08773473100504931050noreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-91196222488231986302014-05-16T18:11:51.503-07:002014-05-16T18:11:51.503-07:00Hope you know that was me...Linda RisselHope you know that was me...Linda RisselAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-67416462189190740512014-05-16T18:10:25.529-07:002014-05-16T18:10:25.529-07:00After you called me the other day I found myself o...After you called me the other day I found myself on my knees in daily prayers and with tears. I know our Lord will be there with you and that the positive, power of prayers from many will be with you and help you throughout this time. As we have said time and time again, if only we lived closer. I would do anything to help..hey, I am the queen of take out! I'm with you in spirit and in faith my friend. My love, hugs and prayers.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-88941338369776660522014-05-16T15:03:47.685-07:002014-05-16T15:03:47.685-07:00Thank God and your new doctor for things taking th...Thank God and your new doctor for things taking this positive turn. You are a warrior and have an amazing spirit. I send you love, prayers and good wishes along with so many others. Mary JaneMary Jane Hendersonnoreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-91520149505824839822014-05-16T13:35:07.308-07:002014-05-16T13:35:07.308-07:00Carole Leigh - it is wonderful to read all that yo...Carole Leigh - it is wonderful to read all that you have shared and MORE wonderful that you have the energy to share with such depth of these many months of a myriad of emotions and physical challenges.<br /><br />Bread - the staff of life - baking it, eating it, nourished by it - so indicative that this is the one - perhaps first - tangible entry back to a more hope-filled time. May you bake many loaves in the days to come! <br /><br />xo LynnLynn Severancehttps://www.blogger.com/profile/04093087280958240406noreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-28595998286042082672014-05-16T12:12:51.302-07:002014-05-16T12:12:51.302-07:00HELLO. BODAECIA!!! I am so happy to hear you have...HELLO. BODAECIA!!! I am so happy to hear you have arisen from the depths of despair and feeling so awful for so long. and you baked bread !!! living with hope is so powerful, a mighty shield and another kind of good medicine - for mind, body, and soul. EM to follow...<br /><br />much love,<br /><br />Karen xoxotccomments2013https://www.blogger.com/profile/00446394638074551345noreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-23552758542078141002014-05-16T11:55:06.730-07:002014-05-16T11:55:06.730-07:00Bodaecia would envy your spirit, Carole Leigh! Gat...Bodaecia would envy your spirit, Carole Leigh! Gathering ebbing energy to bake bread, the simple desire to make food for your family rather than snatching it from a grocery counter, describes your love for those who share life with you. Live with hope. You are strong and brimming with a kind and gentle innocence of expectation. Blessings.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7461139104474725203.post-83250713231844515672014-05-16T07:41:02.760-07:002014-05-16T07:41:02.760-07:00Carole Leigh, I have been so worried about you. I...Carole Leigh, I have been so worried about you. I can relate with the renal failure. My creatinine is creeping up as well in spite of the chemo infusions (Rituxan). Then I came down with a bad case of shingles, due to the Rituxan knocking my already suppressed immune system even lower. The shingles came after a 12 hour bout of vomiting following the fourth infusion on May 1st. I was thinking of my last wishes about that time. The shingles are going away but I still have residual pain and may have it for awhile. My most conservative doctor, after sending me for labs this week, told me to go ahead and go to Hawaii with my family and I kinda felt as if it was granting a dieing wish! Not to be overly dramatic or anything like that. I hope things are looking up for you. It sounds as if you have the right doctor with the right plan of action. I am happy about that. I don't know where I am headed with my kidney failure but I know all my doctors are concerned. I did get a little improvement after the infusions in October and perhaps that will happen again if I am lucky. Good luck to you and keep fighting! Love to you. DorisAnonymousnoreply@blogger.com