Thursday, January 1, 2015

Time to Say Goodbye . . .


Carole Leigh Fitch Ingram


Many times over the past couple of years, my mom, Carole Leigh, would mention to me that “one day you’ll have to make a blog post on my behalf.” I absolutely hated when she said that as I’ve been exceptionally talented at mentally pushing this day out into the future. But I did make her that promise and today it is my heart-wrenching duty to fulfill it. On the evening of October 23rd, Mom died peacefully at home after a brief stay in the hospital. She was surrounded by her family and her kitty cat Lily was beside her on the bed as she was finally forced to say goodbye.




One of Mom's all-time favorite songs "Time to Say Goodbye" performed by Sarah Brightman & Andrea Bocelli.


Today would have been Mom’s 69th birthday.  Mom was always pleased to note that she was the “first Baby Boomer.” And indeed she was born on January 1, 1946, the date historians mark as the first of the Baby Boom Generation.  Mom’s birthday was also special, simply because it fell on New Year’s Day. While she generally hated having this date for her birthday, I always thought it was incredibly special and it made our New Year’s celebrations so much more meaningful. For me, both New Year’s Eve and New Year’s Day will always be intrinsically woven together with memories of my beautiful mother. And neither holiday will ever feel the same again – there won’t be any more birthday cake at midnight. I always thought it seemed so fitting to usher in the new year celebrating the birth and the life of my mom, one of the most remarkably good people I have ever known.



Carole Leigh age one


Mom was featured in the newspaper with another little boy on her 5th birthday as the first of the Baby Boomers.



Mom wasn’t ready to give up her fight with multiple myeloma. She had recently gone back on the new combination therapy she mentioned in her last post – carfilzomib, pomalidomide, and dexamethasone. That combination is a cutting edge therapy that she’d only been able to take one round of in the spring before multiple hospitalizations and kidney issues forced her to stop treatment. A few weeks before she died she met again with Dr. Bensinger at Seattle Cancer Care Alliance and had a very encouraging visit. Her road ahead would be very tough, but she had responded very well to the treatment the first time she was on it. So we had new hope – yet again.



Always a sweetheart, Grandma tells me Mom was an angel from the day she was born.


Unfortunately Mom had a fall in her kitchen. She took a glancing blow to her head and thought she was perfectly fine. But it turned out she had started bleeding in her brain. And because her platelet counts were so incredibly low – her body had no way to heal itself. Because of her many complications, including kidney failure and dialysis, the brain surgery that would have been required to stop the bleeding would have been much too difficult for her to tolerate. She likely would have suffered, and likely wouldn’t have made it. Her group of doctors including her attending doctor, oncologist, nephrologist, and neurosurgeon all agreed that it was in her best interests not to proceed with further treatments – and we were sadly forced to agree.



Many of you know my dad Brent as Mom's "hero" and indeed he was a tireless caregiver offering her constant love and support. He never complained and would drop anything for her smallest need. Here they are just starting out together.



Happy times together


While Mom hadn’t been ready to give up just yet, I also know that she was at peace with her life and with its looming and likely untimely end.  She’d had years to think on this disease and how it affected her life, and how it would affect her life’s end. And I know that Mom came to the end of her life with few, if any real regrets – and she was truly at peace with whatever would come. And she had good reason to be, for hers was a life incredibly well-lived.



 Mom was an avid roller-skater as a girl. She's the blond just to the left of 12 o'clock.


For those of you who only knew her through this blog, I’d like to tell you a little bit about her personality and life.  When someone passes on, we generally hear how wonderful they were and many positive words about them, as we should. But I can’t emphasize to you enough, when I say that Mom was truly, truly one of the kindest, gentlest, and most generous spirits, that in her case the words don’t begin to scratch at the truth of what a lovely human being she was. 

She walked through life with a cheerful and open disposition, making friends wherever she went. I’ve never known someone so ready to embrace new friends and to see the good in others. I read a quote years ago that said “He likes to like people, therefore people like him.” And I’ve always thought this described Mom very well. She expected to be pleased with others and I believe she saw in others their finer selves, and in turn people loved her very dearly. And maybe it was this open-hearted, loving nature of hers that accounts for her generosity of spirit. Mom was tirelessly patient with others and giving of her time, energy, resources, and love. She was tolerant and accepting of even the most difficult people in her life – and was willing to continue to lovingly serve them when they were in need. She was always the first to speak up for someone and give them the benefit of the doubt. As an elementary school teacher she was not only routinely given the difficult children, but also worked with extremely difficult parents very well. She had a unique and rare knack for finding common ground and compassionate understanding with others.

Another remarkable trait of Mom's was her lack of complaint. Throughout the 5 years of her illness, while she had many moments of feeling down, and gloomy, and sad - she never asked "why me?" I view this as a testament to her humble nature. In fact, she often asked the opposite, "why not me?" This always blew me away - so many of us (myself included) might rail against the Universe, scream "it's not fair," and ask over and over again "why is this happening to me?"  Mom never did. While she was very sad and many times scared about her diagnosis, she accepted it and steeled herself against the heavy winds this disease brought her way.




Enjoying her beautifully decorated living room one Christmas.


Mom was also an intense lover of beauty with an eye for detail that I always envied. She had a gift for finding the beauty in the smallest of things and noticing it all around her in the world. From the smallest leaf, to the hawk perched atop a tree a mile away, to the most spectacular of sunsets, Mom noticed them all. On a typical rainy, dreary northwestern day, my dad and I can often be heard moaning and complaining about the weather, and the lack of the bright, beautiful sun. But Mom would usually chime in and say “but look at that bare tree there – look at the beautiful lines of its branches and the lovely silhouette it makes against the sky.” That was Mom through and through.


Mom in her classroom with her "Tigers."









Mom not only appreciated beauty and art – she also created it. One of my greatest regrets in life is that I did not inherit her endless artistic talents. She was a wonderfully talented painter, despite not spending a terribly great amount of time doing it. And she brought her artistry into her classroom, creating wonderful displays and art projects that stimulated and enriched her students’ lives. Her classroom was always a riot of color and covered with art she created and taught her students to create. A school district custodian once told her she had the best classroom in the entire district – and he knew as he’d been in every one.  But Mom’s talents weren’t limited to the visual arts. She was also a lover of music and was a dedicated and talented pianist as a girl. As a sophomore in high school Mom spent countless hours practicing Chopin’s Polonaise Heroic as her talent for the Quil Ceda Pageant, at which she won Sophomore Princess. One of the last things Mom wrote on her Facebook page was about an upcoming performance we were planning to attend together of Mozart’s Requiem. She had this to say: “I have always loved Mozart and said his music makes my heart sing, but his Requiem makes my heart soar!”




Mom practiced tirelessly to perform this Chopin "Polonaise N°6 l'heroique". Performed here by Martha Argerich.



Grandma Ella, me, and Mom out to lunch in August.


Mom with her niece Tova when she visited from Denver this summer.


Mom would want me to make sure to tell you that despite what was an incredibly difficult year for her (the lack of blog posts speaks to this fact), there were also many bright spots peppered throughout. Sometime in late spring or early summer, her white counts boosted back up well into the normal range and she was free to get out and enjoy the world on the days that she felt strong. We had several wonderful dinners out on the waterfront in Seattle, celebrated my dad’s 70th birthday with a surprise party, and had treasured friends and relatives come and stay with us in August and September. The highlight of this time for Mom was attending her 50th high school class reunion in August. She felt like a million bucks that night and said she felt like the belle of the ball.



Belle of the ball - on her way to her 50th Class Reunion


Our dear friend Amy came to visit from Charleston in September


Mom would also want me to tell all of you out there around the world – how tremendously much she valued your love and support. Both the vocal support and the quiet nameless hits to her blog from points all across the globe. She marveled that people from the seemingly farthest corners of the world were reading her blog. You buoyed her spirits and gave her solace in the messy world of multiple myeloma in which she’d found herself. And we, her family, can’t begin to thank you for giving that gift to our beloved wife, mother, daughter, sister and friend.



This image was the very last post Mom shared on her Facebook wall.


As we start this new year, and what would have been the start of her very own new year – her loss feels all the greater. None of us really felt up to celebrating New Year’s Eve last night without her. But today I want to honor her memory, her life, and this fortuitous day on which she entered the world 69 years ago. I do this by sharing these little pieces of her life with all of you. By fulfilling the promise I made to her, by promising to go forward into the new year remembering to live by her example, and by bringing with me the lessons she instilled in me of what it means to be a good person. What it means to be a patient, generous, and loving member of our community. I have been blessed beyond all measure to have had her these many years. She will be sorely, sorely missed - but we take comfort in knowing how many lives she touched, and how many friends she had who loved her as we did. Her life was shorter than we'd have liked - but it was full to brimming with community, friendship, adventure and love.


Happy Birthday Mom – our lives will never be the same, but we will carry your gentle spirit and generous ways with us always, tenderly in our hearts.



Dad, me, Mom, and my brother Tyler in Hawaii in 2006.



If you’d like to help remember Mom today, please consider donating blood, platelets, or plasma - and as I know many of you can’t - please encourage those around you to offer this gift. I can’t even comprehend the vast number of units Mom received, and that saved her life on more than one occasion, letting us keep her with us a little longer. I have continually marveled at the generosity of so many nameless strangers out there who gave this gift to my mom and to us.


Love, 
Marisa



In Bologna, Italy 2012

24 comments:

  1. Sweet Marisa - what an incredibly beautiful tribute to your mom.
    I followed her blog posts as a friend, not one who had the cancer she fought so valiantly.

    I know many of her online friends were inspired in their own journeys with that form of cancer and all were encouragers to on another. This became an amazing forum for the very spirit your mom showed - wherever she was.

    I am so appreciative that you took this time to honor her wishes for there are many who will not have known of her death in late October. As sad as they will be in facing that loss - you loving words will bring them into a place of knowing more about her and for that, they will be blessed as were any of us who knew her.

    And cake on New Year's Eve? I'd say that is a tradition that could well continue on and be a wonderful tribute each year. You mom would love that!

    With care,
    Lynn ( ADK friend )

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    1. Thank you Lynn for your kind words - they are very appreciated. I know that you were a follower of Mom's blog and a devoted friend throughout. Laurel has also let me know you shared this with a larger ADK community - thank you - I truly appreciate that!

      And yes, you are right - I should reconsider having cake at midnight! This year was not one for celebrating - but perhaps next year :) This really has been an emotionally difficult few days. Her birthday coming and going without her has been harder than I even imagined. But writing this post helped me to feel I was doing something for her and that was a comfort. Though since publishing this, I can't help feeling how inadequate it all seems - to try to distill the essence of someone, of their vast and brilliant personality and life, into one blog post. It's kind of bothering me to be honest. She was so much more than this pin prick of words about her can convey. And of course I remember so many things that I left out and think - oh, I should have said this, or that. For example, I forgot to mention her incredible optimism and positive outlook on life - or her love of travel and keen interest in the world around her and beyond. She always believed things would get better - and even just before she died she was talking about another trip to Europe when she was well enough. But, I tried my best and will have to be at peace with what I've said.

      But thank you again for the friendship and support you offered Mom. And thank you again for your comment - the kind words of those who knew us continue to be the most comforting part of this loss.

      Much Love,
      Marisa

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  2. Thank you Marisa for posting this very moving tribute to your mother. Carole and I started blogging at around the same time and followed each other's blogs. We shared a similar path with our myeloma, relapsing around the same time and I was saddened and shocked to learn of her passing. I'm glad she was able to be at home surrounded by her clearly very loving family and may she now rest in peace.

    Regards to you and your family

    Wendy

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    1. Thank you Wendy for your comment - I've heard Mom talk about you and I know that you meant a lot to her. It can be a lonely road to walk and I know that having others in her life who understood her path made her journey more bearable. Thank you for being there for her - your support meant the world to her. She often talked about her blog friends and what a unique and special bond she shared with them. She marveled at and was grateful for the connections she made as a result of this blog and.through this crazy world of the internet.

      Best regards to you as well and I wish for you to continue to get well and to beat back your myeloma.

      Marisa xo

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  3. Dear Marisa, what a beautiful tribute to your beautiful mother. I was born in Seattle and loved reading about her life there, and seeing her lovely pictures!. She was a gifted writer, and I'm sure she left an impression on every little student she taught, and friend she met, whether in person or online. My husband was diagnosed in January 2010, so it is always interesting to hear from others who began their battle at about the same time. She fought the good fight with grace and I'm thankful she was able to attend her reunion and enjoy special visits in August and September. Thank you for giving us a glimpse into her personal life, growing up, and as a wife and mother. She will be missed.

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    1. Hi Linda, thanks so much for your kind words - they are greatly appreciated. I know that you understand very well what this road has been like and what a comfort it is to know others who are on a similar path. I hope that your husband will continue to be strong and stay healthy in his fight against MM. And I wish the same for you as you support him in his journey. Thank you again for reaching out, I truly appreciate that so very much!

      Warm regards,
      Marisa xo

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  4. Oh, honey. We are very saddened by your loss. Your mom was a DOLL!

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    1. Thank you so very much Dom and Nan - that's exactly right - she was indeed a DOLL!! She was a treasure and it is so hard to let her go. Thank you for your thoughts :)

      Marisa xo

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  5. Oh, honey. We are very saddened by your loss. Your mom was a DOLL!

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  6. Dear Marisa, I'm generally not at a loss for words, but I am just so overwhelmed with your beautiful mom's passing and your beautiful tribute to her, I feel anything I could say would be inadequate! Carole Leigh and I were diagnosed around the same time, endured similar treatments and experiences and became MM blog "girlfriends". I feel so very lucky to have known her the years I have, and that we were able to not only correspond via our blogs, but eventually via email and chat on the phone. I cannot say enough about your mom's strength, her beauty- inside and out, and her courage. Ever since I found out she passed, a day has not gone by that she hasn't been in my thoughts. I only knew a tiny bit about her, and your post about her life is just so beautiful, inspiring and just gives us so much more insight into what an incredibly remarkable person she is! Thank you for sharing your thoughts and heart here and sharing so many wonderful details about beautiful Carole Leigh. What you wrote and posted keeps mom so "alive" here. She would be so very proud of you and so very happy with your incredible tribute. I also just love the pictures you posted as it gives us an even greater insight into how remarkable your mom was! Thank you Marisa for sharing as you have and please know your mom (and you and your family) are forever in my heart and thoughts. She touched my life deeply forever. Eternal love and hugs, Julie

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    1. Hi Julie - thank you so very much for your kind and heartfelt words - they aren't inadequate - in fact they moved me to tears. I know very well what your friendship meant to Mom - she talked about you often and was so grateful and amazed to have made friendships like yours through her blog. And she was so happy to be able to talk with you on the phone - she told me how wonderful that was for her. I know she wished that she could meet you in person one day. I'm very glad that you were able to at least meet her over the phone - I'm sure her personality came through very well - and she was truly a treasure. It is so comforting when I hear that Mom touched someone's life, if even in a small way - it is a reminder and reinforcement of what I already know - that she was able to make an impact in this world before she left it. And you touched her life as well - she often said how you made her laugh - and that is a true gift in the midst of this disease. I hope that you will continue to perservere in your own fight against this disease. I will be thinking of you - like Mom, I am so glad to have met you too :)

      Marisa xox

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    2. Hi Marisa, just stopping by to say Hi to you and your family and to let you know I think about your beautiful mom every day! For real!!! Our MM blog friendship was such wonderful bright spot in my life. I've reread your tribute to your beautiful mother many times and I can't tell you how much what you wrote and the pictures you posted bring your mom to life here... forever! I'm glad to see you check in here, as I will, always. I have your mom's blog "permanently" linked on my blog as a tribute to her, as I love having her a part of my life forever! Thank you for your reply to my reply, as I've reread that many times too. I hope your heart is healing (and your dad, brother and mom's mom hearts too). There are no words to adequately console, except please know how much your mom affected my life, and will forever. love and hugs, Julie xoxo

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    3. Hi Julie, thanks so much for continuing to stop by this blog - and I'm so sorry - I didn't see this comment until today!! I feel terrible thinking you might have worried why I didn't respond. But I am so glad to hear from you and it means more than you can know to hear how much this blog post has meant to you. If my words had any small impact in bringing mom more fully to life for you, then I have succeeded at my task. And it is a comfort like no other to hear directly from a friend who tells me mom so affected their life - I can't tell you how that builds me up and comforts me and makes me feel wrapped in her glow. Thank you again for being such a wonderful friend - Mom was beyond thrilled to know you - truly - she talked about you so much! I hope you are doing well, it would be great to hear how you have been coming along in your own journey. Much love, Marisa xoxo

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  7. Marisa, I only knew your Mom briefly through this blog. I was diagnosed in 2011, live in Idaho, and a lot of what she wrote was familiar. We always worry when we don't hear from our blog friends, and I am so sorry for your loss. I am in tears as I write this, even though we never met. It makes me think what people will say about me, in the end, and I hope it is as sweet as your tribute to your Mom. She was blessed to have such a wonderful family. Take care.

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    1. Hi Sheri, thank you so very much for your comment! It feels so good to know that mom connected with so many wonderful people through her blog - and that it made this world of MM a little more bearable. As they say, there is always a silver lining and the people Mom connected with as a result of this disease was something she treasured very much. Many blessings to you as you continue on in your own journey with MM. Much love to you xoo

      Marisa

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  8. Dear Marisa and family,

    Kimberly, Kristin and I are missing your very precious dear mom every day. Carole Leigh was the world to us as she was to so many others. Your mom inspired me all the way through our journey in life whether in the classroom, ADK, or as forever friends and neighbors. Carole Leigh was caring, giving, loving, thoughtful, and all that is good. Again, your mom meant the world to the three of us. Love Forever from Laurel, Kim, and Kris.

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    1. Dear Laurel, thank you so much for your beautiful and loving message. Mom loved you truly dear - just as much as you loved her and I know that you and she will continue to be forever friends, life and death aside. Thank you for your love and loyalty to Mom throughout her life and most especially throughout the last five years as she walked this path of multiple myeloma. Love to you all. xoxo Marisa

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  9. dear Marisa,

    I am so very sorry for the loss of your dear Mother. I have come to this site many times to write to you, but always ended up in such a waterfall of tears, I couldn't compose myself to be able to reach out to you and tell you how much I loved the beautiful tribute you wrote for her.

    I adored your Mom, and felt so fortunate that we became friends and wrote many letters to each other over the last few years. she was such a gifted writer, as she was with so many other things. Carole Leigh was one of the most generous, kind, loving, accomplished and compassionate souls I have ever known. she kept up a steady presence of support and love in my life after my Beloved, Hugh, died suddenly while in remission with multiple myeloma in May of 2013.

    i think we thought that our husbands were cut from the same cloth - both real Knights in Shining Armor. so just as i offer you my deepest condolence, i also offer it to your Dad, and also to your Brother.

    i know your Mom would (is) so proud of these words of love, admiration, and the precious life she lived so well that you have so beautifully crafted. please, dear Marisa, as you grieve the loss of your Mom, please know i am here for you to provide love and support. among the grieving, there are no strangers...

    much love to you and your family,

    Karen (Sutherland)

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    1. Oh thank you Karen for your lovely message - I can't tell you how it bouys my spirits to know what Mom meant to you and you described her so perfectly "the most generous, kind, loving, accomplished and compassionate soul." You don't know just how accurate those words are in describing my darling mother. She was all of those things and so much more. And I love that you call her a gifted writer. You know, that was the one area in which she didn't have great confidence. She never felt she was good with writing. But we know this blog of hers proves otherwise! I remember Mom telling me about your husband's sudden passing and feeling a flash of pain at the news. I'm so sorry for your loss of Hugh - he does sound so much like my dad. That's right - knights in shining armor the both of them! And thank you for your words of support to me as well - that means very much to me. I have felt rather lonely and alone at times as I've walked through this journey without her. That has been one of the hardest parts. Your friendship and support are a great comfort. I hope that you are doing ok Karen - it would be good to hear a bit about how you are doing.

      Much love,
      Marisa xo

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  11. Hi Marisa, just wanted to say hi to you and mom... I think about her all the time and so miss our beautiful (yet so ironic) friendship... Will you always be checking in here, or is there a better way to say hello to you? Not sure if you have retained her cell # and check her email address? When you can, please email me at missy.myeloma9@gmail.com . Carole Leigh, you are in my heart and thoughts forever... thinking of you and your family, especially this Mother's Day. Love and infinite healing hugs to you Marisa, and your family xoxo Julie

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  12. Happy Mother's Day Carole Leigh! You are so missed... xoxo Julie

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  13. Just a great and heart touching blog shared here with us you are really a very nice blogger and a lovely child. May your mother's soul rest in peace.

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  14. Hi Carole Leigh xoxo Thinking about you all the time xoxo
    Hi Marisa. Hopefully you check in here periodically. Love to you and your family.

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