My last blood work showed that the lambda light chain numbers had climbed again, the ratio between kappa and lambda is dropping and the Beta-2-Microglobulin, Serum has continued to rise. These markers are going in the wrong direction and it is upsetting.
Being back in treatment has been a difficult transition for me. My whole mindset and emotional state are trying to adjust to this new reality of multiple myeloma back on the attack. I was never completely comfortable while I was in remission, knowing that it was temporary. However, I had hoped that "temporary" would last a long time and I was able to keep a relatively positive attitude. Now, I am beset with fear and uncertainty about the chances of dominating this disease again.The one positive note in all of this is my oncologist said the amount of myeloma activity is still small, so I am hopeful that Velcade will be able to overpower it and beat it back into submission.
When one is battling multiple myeloma or any aggressive disease, a fierce attitude is probably a good thing to have. To that end, I think I should be calling Velcade by its more ferocious sounding name: Bortezimib.
Though she be but little, she is fierce!
William Shakespeare
My Lab Work
| Component | Standard Range | 11/29/12 | 1/3/13 | 1/31/13 |
|---|---|---|---|---|
| Kappa Lght Chn, Free | 3.3-8.0 mg/L | 9.15 | 7.83 | 8.25 |
| Lambda Lght Chn, Free | 5.7-26.3 mg/L | 42.64 | 51.37 | 62.64 |
| Kappa/Lambda,Free | 0.26-1.65 ratio | 0.21 | 0.15 | 0.13 |
| Component | Standard Range | 4/15/10 | 7/5/12 | 10/26/12 | 1/31/13 |
|---|---|---|---|---|---|
| Beta-2-Microglobulin, Serum | < OR=2.51 | 2.25 | 2.60 | 2.81 | 3.03 |
Oh, yes, Carole Leigh!
ReplyDeleteCall that mighty drug its FULL BLOWN name so that it is your friend, fighting down those cells that have taken up room in your body and need to be blasted out - out - outtttta there.
Yes, a warrior always has to be fierce with any enemy. And we, who are in your army of friends, will be fierce in our prayers, too. Amen.
Thank you for being fierce for me!
DeleteLove,
CL
dear carole leigh,
ReplyDeletedammit! myeloma makes me very angry when it messes with my friends. i am sorry you are back in treatment; i will BELIEVE right along with you that the BORTEZIMIB will pulverize whatever is making your markers misbehave - after all, it DOES sound like a good name for a super-hero.
i will muster every fiber of FIERCE vibes i can to send to you for re-inforcements. your fierceness and BORTEZIMIB'S ferociousness - i think we're takin' war here. so myeloma - get ready to surrender!
sending you much love, XOXO,
karen, TC
Karen,
DeleteWe ARE talking war! I loved your comment....it brought a smile to my face. Thank you for always being there.
Love,
Carole Leigh
Hello, my friend! Great attitude, honey. Keep up the good fight!
ReplyDeleteHello back, my friend. Thank you for your continued support!
DeleteLove,
Carole Leigh
My loved relative is still keeping the MM at bay with the Rev, so I am intending the same success for you. Winston Churchill said "we will never give up," and I am sure you will move forward with an aggressive mind set to bring yourself back into a more stable state. Aligning with your intentions...
ReplyDeleteDear Samdy,
DeleteI am so happy to hear that your relative is keeping MM at bay. I will keep Churchill's words in mind as I intend to get my light chains back to normal. GO BORTEZIMIB!!
Love,
Carole Leigh